May 2024
NEW American Society of Clinical Oncology Cancer Survivorship Community of Practice
This group aims to bring together a multidisciplinary and multispecialty group of clinicians, researchers, policy makers, and patient advocates interested in improving the care for cancer survivors, from the time of diagnosis. Membership in ASCO not required, but need to have a login account.
https://myconnection.asco.org/home
April 2024
National Cancer Institute updates information focusing on Adolescents and Young Adults with Cancer
https://www.cancer.gov/types/aya
March 2024
American Society of Clinical Oncology Survivorship Community of Practice
Follow link to join, no need to be member of ASCO, just set up account.
https://conferences.asco.org/am/communities-practice
February 2024
Journal of Cancer Survivorship Special Section on the History of Cancer Survivorship Centers in the US: Progress, Challenges, and Opportunities
https://link.springer.com/collections/efcddehhfa
January 2024
NCCS 2023 State of Cancer Survivorship Care Survey Report is released
https://canceradvocacy.org/2023-state-of-cancer-survivorship-survey/#briefing
October 2023
Screening for lung cancer: 2023 guideline update from the American Cancer Society
https://acsjournals.onlinelibrary.wiley.com/doi/full/10.3322/caac.21811
July 2023
Developing a Multidisciplinary and Multispecialty Workforce for Patients with Cancer, from Diagnosis to Survivorship: A Workshop
https://www.nationalacademies.org/our-work/developing-a-multidisciplinary-and-multispecialty-workforce-for-patients-with-cancer-from-diagnosis-to-survivorship-a-workshop
June 2023
Revised American Society of Clinical Oncology Guideline on Anxiety and Depression
https://ascopubs.org/doi/10.1200/JCO.23.00293
Commentary from ASCO Daily News
https://dailynews.ascopubs.org/do/asco-updates-guideline-management-anxiety-and-depression-adult-cancer-survivors
May 2023
New Cancer Survivorship Podcast on Medscape
https://www.medscape.com/viewarticle/983318
April 2023
The Office of Cancer Survivorship (OCS) Director’s Webinar Series. Each webinar focuses on research that examines and addresses the long- and short-term physical, psychological, social, and economic effects of cancer and its treatment among pediatric and adult survivors of cancer and their families.
https://cancercontrol.cancer.gov/ocs/about/events/ocs-directors-series
March 2023
Metastatic Cancer Survivorship: Reconceptualizing Survivorship for the Modern Cancer Era
https://ascopubs.org/doi/10.1200/JCO.22.02212
February 2023
New bipartisan bill introduced in late 2022 focusing on cancer survivorship
https://ascopost.com/news/december-2022/bipartisan-comprehensive-cancer-survivorship-act-introduced/
January 2023
New American Cancer Society Cancer Action Network report – The Costs of Cancer Survivorship – 2022
https://www.fightcancer.org/policy-resources/costs-cancer-survivorship-2022
December 2022
ESMO Expert Consensus Statements on Cancer Survivorship: promoting high-quality survivorship care and research in Europe.
https://pubmed.ncbi.nlm.nih.gov/35963481/
November 2022
Dr. Narjust Florez, Assistant Professor, Dana-Farber Cancer Institute, presents a webinar focused on From Sexual Health to Side Effects Management, posted on Survivor Journeys 101 Series.
https://youtu.be/1nnGg3LxaL8
October 2022
Dr. Don Dizon, Professor Brown University, presents a webinar focused on Gynecological Cancer Survivorship, posted on Survivor Journeys 101 Series.
https://youtu.be/ROjQFyAGIbg
September 2022
Cancer Survivorship: A Primer to Improve Care
New 1-hour CME on cancer survivorship, Massachusetts Medical Society
https://www.massmed.org/Continuing-Education-and-Events/Online-CME/Courses/Cancer-Survivorship/Cancer-Survivorship–A-Primer-to-Improve-Care/
Compendium of the Entire Nutrition, Physical Activity, Body Weight, and Cancer Survivorship Series
American Cancer Society develops an informative, six-part series for primary care and oncology healthcare providers working with cancer survivors during treatment, immediately after treatment, or during long-term survivorship.
https://www.acs4ccc.org/the-new-nutrition-physical-activity-body-weight-and-cancer-survivorship-series
August 2022
NCI awards $23 million to establish centers of excellence to study telehealth for cancer care
https://www.nih.gov/news-events/news-releases/nih-awards-23-million-establish-centers-excellence-study-telehealth-cancer-care
July 2022
New Cancer Survivorship Statistics released by the National Cancer Institute and the American Cancer Society
As of January 2022, it is estimated that there are 18.1 million cancer survivors in the United States. This represents approximately 5.4% of the population. The number of cancer survivors is projected to increase by 24.4%, to 22.5 million, by 2032.
https://www.cancer.org/research/cancer-facts-statistics/survivor-facts-figures.html
June 2022
New speakers added to the Survivor Journeys Cancer Survivorship 101 Series
Dr. Maryam Lustberg, Yale Cancer Center, discusses “Metastatic Survivorship“ – https://youtu.be/afJzIr22lrk
Dr. Alicia Morgans, Dana-Farber Cancer Institute, discusses “Prostate Cancer Survivorship” – https://youtu.be/ztTQVYFgfGQ
May 2022
New The Lancet series focusing on Cancer Survivorship
“The number of cancer survivors is growing due to ageing populations and improved early detection and treatment. Yet current models of predominantly specialist-led care fail to adequately address the physical, psychosocial and supportive care needs of survivors of cancer. This Lancet series of 3 articles is a response to these needs.”
https://www.thelancet.com/series/cancer-survivorship
April 2022
Cardiovascular mortality in cancer survivors. New study published in the Journal of the American College of Cardiology found that in older survivors of 9 common cancers, cardiovascular mortality becomes dominant over mortality from the primary cancer, though not always over total cancer mortality, as time passes since cancer diagnosis.
https://www.jacc.org/doi/10.1016/j.jaccao.2022.01.102
March 2022
Over 300 systematic reviews in breast cancer survivorship!!! New paper published in the Journal of Clinical Oncology found that there is a huge body of evidence but silos and with gaps in key areas of cancer survivorship.
https://ascopubs.org/doi/full/10.1200/JCO.21.02015
February 2022
American Cancer Society Cancer Statistics, 2022
Slow increase in female breast cancer (by 0.5% annually) and remained stable for prostate cancer, despite a 4% to 6% annual increase for advanced disease since 2011. The proportion of prostate cancer diagnosed at a distant stage increased from 3.9% to 8.2% over the past decade. Lung cancer incidence continued to decline steeply for advanced disease while rates for localized-stage increased by 4.5% annually.
https://acsjournals.onlinelibrary.wiley.com/doi/full/10.3322/caac.21708
January 2022
The NCI Office of Cancer Survivorship Twenty-five Years of Progress https://cancercontrol.cancer.gov/sites/default/files/2022-01/DCCPS_OCS_25th_Anniversary_report.pdf
November 2021
New books posted on our website https://cancersurvivorshipprimarycare.org/key-resources/books/
New link to The Monthly Drip, a monthly webinar hosted by Teen Cancer America to provide current education on AYA related topics for healthcare professionals.
https://www.youtube.com/playlist?list=PLSyLhU3jyJrTSk9jJEex0rDgGsSS50cHz
October 2021
New podcast! Hear more about a career in cancer survivorship as a general internist. Check out podcast featuring Dr. Nekhlyudov and her student, Andrea Anampa-Guzman.
https://www.healio.com/news/hematology-oncology/resources/oncology-overdrive/episode-43
Cancer survivorship 101: The Basis of Cancer Survivorship Care, Dr. Ann Partridge at Survivor Journeys
https://youtu.be/GSyJR_OdSNE
September 2021
National Comprehensive Cancer Center Guidelines for Patients
Updated Uterine Cancer Guidelines, with an expanded cancer survivorship section, may be quite helpful for primary care providers too! More in GYN coming.
https://www.nccn.org/patients/guidelines/content/PDF/uterine-patient.pdf
Additional topics
https://www.nccn.org/patientresources/patient-resources/guidelines-for-patients
August 2021
Survivor Journeys Cancer Survivorship 101
Video lecture series now in its second year! See upcoming and past lectures given by prominent cancer survivorship experts. August speaker Dr. Huma Q. Rana, Clinical Director, Division of Cancer Genetics and Prevention, Dana Farber Cancer Institute
July 2021
Cancer Mavericks Podcast Launched
Monthly episodes through the end of December 2021, intended to commemorate the 50th anniversary of the signing of the National Cancer Act of 1971.
https://cancermavericks.com/
June 2021
Survivor Journeys Cancer Survivorship 101
Video lecture series now in its second year! See upcoming and past lectures given by prominent cancer survivorship experts. June speaker Emily Tonorezos MD, MPH, Director of the Office of Cancer Survivorship.
May 2021
NEW! Cancer Survivorship: Optimizing Care and Outcomes CME
The goals of this CME program are to increase awareness among clinicians about the need for comprehensive cancer survivorship care and specific areas where improved survivorship care can lead to improved patient outcomes.
Outcomes of cancer survivorship education and training for primary care providers: a systematic review
This review identified published literature regarding cancer survivorship education programs for primary care providers and assessed their outcomes.
https://link.springer.com/article/10.1007/s11764-021-01018-6
April 2021
NCI Virtual Meeting on Survivorship Needs for Individuals Living with Advanced and Metastatic Cancers – May 2021
https://cancercontrol.cancer.gov/ocs/metastatic-survivorship-meeting
ASCO.net posts about role of primary care – physician and patient perspectives
https://www.cancer.net/blog/2021-03/how-your-primary-care-provider-can-help-you-throughout-your-cancer-experience
https://www.cancer.net/blog/2021-03/how-finding-right-primary-care-physician-during-cancer-has-helped-my-physical-and-emotional-health
New report from the National Academies of Science, Engineering, and Medicine (NASEM)
The U.S. Social Security Administration has requested that the National Academies of Sciences, Engineering, and Medicine conduct a study to provide an overview of the current status of the diagnosis, treatment, and prognosis of adult cancers, and the relative levels of associated functional limitation associated with these cancers, common treatments, and other considerations.
https://www.nationalacademies.org/our-work/diagnosing-and-treating-adult-cancers
March 2021
Cancer Center Survivorship Research Forum – April 15-16, 2021
This symposium will address the entire spectrum of cancer survivorship care: monitoring and management of the late and long term effects ranging from cardiotoxicity to cognitive changes, screening for other malignancies, and promotion of healthy lifestyles.
https://ccsrf.umn.edu/
PRIORITIZING COVID-19 VACCINES FOR PATIENTS WITH CANCER AND SURVIVORS OF CANCER
https://www.aacr.org/professionals/policy-and-advocacy/aacr-and-the-biden-administration/prioritizing-covid19-vaccines-for-cancer-patients/
February 2021
The National Coalition for Cancer Survivorship (NCCS) Telehealth Project
Resources to help survivors improve telehealth experience in oncology.
https://canceradvocacy.org/resources/telehealth/
January 2021
Readdressing the Needs of Cancer Survivors During COVID-19: A Path Forward
https://academic.oup.com/jnci/advance-article/doi/10.1093/jnci/djaa200/6050827
December 2020
Cancer Survivorship Care mobile apps now added to our website
http://cancersurvivorshipprimarycare.org/key-resources/mobile-apps/
October 2020
2020 State of Cancer Survivorship Survey, National Coalition for Cancer Survivorship
https://canceradvocacy.org/policy/2020-state-of-cancer-survivorship-survey/
July 2020
Cancer diagnosis during COVID-19
Cancer has not gone away: A primary care perspective to support a balanced approach for timely cancer diagnosis during COVID‐19
https://onlinelibrary.wiley.com/doi/full/10.1111/ecc.13290
June 2020
AYA Cancer Survivorship
Survival among individuals aged 15-39 has improved over the past decades, but AYA survivors have inferior long‐term survival compared with the general population. These findings highlight the importance for research aiming to improve treatment and its associated long/late-term effects.
https://acsjournals.onlinelibrary.wiley.com/doi/abs/10.1002/cncr.33003
May 2020
Cancer and COVID-19
Data continues to emerge about cancer-related risk factors for COVID-19 and its complications. More resources and articles available. Few examples below –
Addressing the needs of cancer survivors during the COVID-19 pandemic.
https://link.springer.com/article/10.1007/s11764-020-00884-w
Practical Approach to the Management of Cancer Patients During the Novel Coronavirus Disease 2019 (COVID‐19) Pandemic.
https://theoncologist.onlinelibrary.wiley.com/doi/10.1634/theoncologist.2020-0213
Impact of the COVID-19 pandemic on the symptomatic diagnosis of cancer: the view from primary care.
https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30242-4/fulltext
April 2020
Cancer Care and Survivorship During COVID-19
COVID-19 has important implications on the care of patients living with and beyond cancer. A number of organizations have provided specific guidance. The following links are directly geared toward clinicians caring for cancer survivors and survivors themselves. As information is rapidly evolving, it is important that you consult your own healthcare organizations and/or physician.
Guidance from UptoDate
Guidance from ASCO/NCCS
February 2020
The American Cancer Society Journals curated a special collection of the latest survivorship research, highlighting topics covering economic impact, mortality in young survivors, patient care planning, and the 2019 Cancer Treatment and Survivorship Statistics from CA: A Cancer Journal for Clinicians.
https://acsjournals.onlinelibrary.wiley.com/doi/toc/10.3322/(ISSN)1542-4863.survivorship
January 2020
Growing interest in cardio-oncology – cardiovascular health in cancer survivors
American College of Cardiology
https://www.acc.org/clinical-topics/cardio-oncology#sort=%40fcommonsortdate90022%20descending
https://www.acc.org/cvoncology
December 2019
Remembering Fitzhugh Mullan, MD
https://www.canceradvocacy.org/nccs-news/remembering-fitzhugh-mullan-md/
https://www.canceradvocacy.org/wp-content/uploads/2013/01/Seasons-of-Survival.pdf
November 2019
The Cancer Survivorship E-Learning Series for Primary Care Providers – Updated 2019
http://gwcehp.learnercommunity.com/elearning-series/default
October 2019
Exercise is medicine in oncology: Engaging clinicians to help patients move through cancer
https://onlinelibrary.wiley.com/doi/10.3322/caac.21579
https://www.nytimes.com/2019/10/16/well/move/exercise-advice-for-surviving-cancer-and-maybe-avoiding-it.html
September 2019
Life After Surviving Cancer: The Relief, Challenges And New Fears
WBUR/NPR On Point podcast focusing on living beyond a cancer diagnosis
https://www.wbur.org/onpoint/2019/09/19/cancer-treatment-survival-medical-issues
August 2019
SurvivorJourneys Cancer Survivorship 101
Videos of sessions available via link below
https://www.survivorjourneys.org/resources/survivor-journeys-educational-events/cancer-survivorship-101-june-2019
June 2019
Close to 17 million survivors in the US, projected to 22 million by 2030
Cancer treatment and survivorship statistics, 2019
https://onlinelibrary.wiley.com/doi/full/10.3322/caac.21565
April 2019
Former Boston Red Sox CEO Larry Lucchino to share cancer story at survivorship forum
https://www.masslive.com/news/2019/04/former-boston-red-sox-ceo-larry-lucchino-to-share-cancer-story-at-survivorship-forum.html
March 2019
Caring for Patients Across the Cancer Care Continuum: Essentials for Primary Care
https://www.springer.com/us/book/9783030018955
January 2019
Handbook of Cancer Survivorship, 2nd Edition
https://www.springer.com/us/book/9783319774305
January 2018
Cancer Survivorship Symposium
February 16-17, 2018
http://survivorsym.org/
July 2017
Long-Term Survivorship Care after Cancer Treatment: A Workshop
July 24, 2017 – July 25, 2017
http://www.nationalacademies.org/hmd/Activities/Disease/NCPF/2017-July-24.aspx
January 2017
Cancer Survivorship Symposium
January 27-28, 2017
http://survivorsym.org/
December 2015
Cancer Survivorship Symposium: Advancing Care and Research. A Primary Care and Oncology Collaboration – Meeting in January 2016!
Conference co-sponsored by the American Society of Clinical Oncology, American Academy of Family Practitioners and American College of Physicians.
http://survivorsym.org/
March 2015
Cancer: The Emperor of All Maladies
A three-part, six-hour documentary by filmmaker Ken Burns premiers on PBS on March 30-April 1. Based on the 2010 Pulitzer Prize-winning book The Emperor of All Maladies: A Biography of Cancer by Siddhartha Mukherjee.
http://cancerfilms.org/about-the-film/
January 2015
ASCO Survivorship Resources
http://www.asco.org/sites/www.asco.org/files/survivorcompendium2014_web.pdf
http://www.asco.org/sites/www.asco.org/files/asco_scp_revised_template_final.docx
October 2014
Harvard Medical School – Dana Farber Cancer Institute CME Program
Cancer Survivorship: Optimizing Care and Outcomes
November 13-14, 2014
June 2014
Growing Numbers of Cancer Survivors in the United States
http://www.cancer.org/research/cancerfactsstatistics/cancerfactsfigures2014/index
http://www.cancer.org/acs/groups/content/@research/documents/document/acspc-042801.pdf
Annual report provides the estimated numbers of new cancer cases and deaths in 2014, as well as current cancer incidence, mortality, and survival statistics and information on cancer symptoms, risk factors, early detection, and treatment.
January 2014
General Internists’ Knowledge about Cancer Survivorship
Study in the Annals of Internal Medicine finds internists are not comfortable caring for childhood cancer survivors, editorial points to educational directions.
http://annals.org/article.aspx?articleid=1811026
http://annals.org/article.aspx?articleid=1811030
An earlier study points to lack of awareness of late effects of chemotherapy among primary care providers.
https://www.ncbi.nlm.nih.gov/pubmed/24222054
September 2013
Institute of Medicine Report on Cancer Care in Crisis
“Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis” presents the IOM Committee’s findings about the quality of cancer care and recommendations for improvement (including role of primary care providers).
June 2013
New book, Oncology in Primary Care (Rose, MG, Devita VT, Lawrence TS, Rosenberg SA, eds.) is for primary care clinicians who need practical and concise information on caring for their patients with cancer. Written in an easy-to-browse format, chapters cover risk factors, prevention, screening, prognosis, and surveillance strategies – includes information that helps primary care clinicians advise their patients regarding therapeutic and end-of-life decisions and become true partners in the care of their patients with cancer.
May 2013
Cancer Survivorship E-Learning Series is launched by the National Cancer Survivorship Resource Center. The series is a free continuing education program that provides a forum to educate primary care providers to better understand and care for survivors in the primary care setting. The program is available through the National Cancer Survivorship Resource Center, a collaboration between the American Cancer Society and the George Washington University Cancer Institute funded by the Centers for Disease Control and Prevention. Several modules have been released to date, others being developed.
April 2013
The National Comprehensive Cancer Network releases first-ever Clinical Practice Guidelines for Survivorship. The Guidelines cover eight distinct areas: anxiety and depression, cognitive function, exercise, fatigue, immunizations and infections, pain, sexual function, and sleep disorders. Free registration required.
http://www.nccn.org/professionals/physician_gls/f_guidelines.asp
March 2013
Paper published in the Journal of the National Cancer Institute finds that high-fat, but not low-fat, dairy related to a higher risk of mortality after breast cancer diagnosis.
http://jnci.oxfordjournals.org/content/early/2013/03/08/jnci.djt027.abstract
A study in the New England Journal of Medicine finds that exposure of the heart to radiation therapy for breast cancer increases the subsequent rate of ischemic heart disease. The increase is proportional to the mean radiation dose, begins within a few years after exposure, and continues for at least 20 years.
http://www.nejm.org/doi/full/10.1056/NEJMoa1209825
January 2013
ASCO Position Statement on Survivorship Care
Developed through the work of the ASCO Cancer Survivorship Committee, the statement outlines a comprehensive agenda for achieving high-quality cancer survivorship care. Coordination of care and education of primary care providers are among the topics addressed.
November 2012
Journal of Clinical Oncology Special Issue: Update on Progress in Cancer Survivorship Care and Research. Focusing on key areas of cancer survivorship, including late physical and psychosocial effects, lifestyle, and care delivery.
http://jco.ascopubs.org/content/30/30/3655.full
http://jco.ascopubs.org/content/30/30.toc
June 2012
American Cancer Society releases new data on cancer survivorship. Number estimated to rise by nearly a third, to 18 million by 2022.
May 2012
6th Biennial Cancer Survivorship Research Conference, “Cancer Survivorship Research: Translating Science to Care,” held at the Crystal Gateway Marriott in Arlington, Virginia, from June 14-16, 2012.